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updated
March 2003

Resources

• articles and books
• other A-T organizations
• links
• events

These resources should not be interpreted as an indication of The A-T Project’s endorsement or sponsorship of any information, products, or services described in the third party resources. The A-T Project does not monitor and is not responsible for the content of these resources.

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Articles and Books

• The A~T Project Newsletter (request back issues at [email protected] )
• The National Organization to Treat A-T, in partnership with Amazon.com, has a list of books that offer general support to families raising children with physical challenges.
  http://www.treat-at.org/find.html

Other A-T Organizations

• The National Organization to Treat A-T
  http://www.treat-at.org/
  4310 Ramsey Avenue
  Austin, TX 78756-3207
  512-323-5161 or 877-TREAT-AT (toll-free)
  The National Organization to Treat A-T supports research that will contribute to a model of disease management for A-T, along the lines of those developed for diabetes, cystic fibrosis, PKU, epilepsy, and others. Specifically, The National Organization to Treat A-T supports research towards finding treatments that will prevent, stop or reverse the relentless progression of ataxia-telangiectasia. In addition, Treat A-T is a close sister organization to The A~T Project.

• The A-T Medical Research Foundation
  http://www.gspartners.com/at/
  5241 Round Meadow Rd
  Hidden Hills, CA 91302
  818-704-8146
  The A-T Medical Foundation has raised more than $4,000,000 to help build permanent research laboratories at the UCLA School of Medicine and the Sackler School of Medicine at Tel Aviv University, has funded research worldwide, and has hosted three world conferences. As a result of their efforts the gene for A-T was cloned 4 1/2 years ago opening the door for an avalanche of research.

• Ataxia Telangiectasia Children’s Project
  http://www.atcp.org/
  398 W. Camino Gardens Blvd., Suite 104
  Boca Raton, FL 33432
  407-483-2661
  800-5-HELP-AT
  The A-T Children’s Project was formed to raise funds through events and contributions from corporations, foundations and friends. These funds are then used to accelerate first-rate, international scientific research aimed at finding a cure and improving the lives of all children with Ataxia Telangiectasia.

• National Ataxia Foundation (NAF)
  http://www.ataxia.org
  2600 Fernbrook Lane, Suite 119
  Plymouth, MN 55447-4752
  763-553-0020

• Xeroderma Pigmentosum Society, Inc. (XP Society)
  http://www.xps.org
  Box 4759
  Poughkeepsie, NY 12602
  518-851-2612

• THE A-T APPEAL
  http://www.innotts.co.uk/~atinuk/
  Glynis & Jeff Watkins
  42 Parkside Gardens
  Wollaton
  NOTTINGHAM
  NG8 2PQ
  United Kingdom
  Tel: + 44 (0)115 928 7025
  We have established a UK charity called The A-T Appeal. Our aims are to help advance knowledge and clinical expertise in A-T through research, with the ultimate goal of finding therapies to benefit everyone affected by Ataxia-Telangiectasia. We also provide information and support and welcome contact with other A-T families around the world so that we can share information and experiences of A-T.

Links

• The AT Childrens Project has a good page of miscellaneous links.
  http://www.atcp.org/info.htm